SEVAI - EDUCATION SECTOR
A day care home for the persons affected with muscular dystrophy established by SEVAI which is Recognized by the Government of Tamilnadu was opened here in which, the centre registered fifty students so far and special care takers were appointed to take care the affected persons.
What Is Muscular Dystrophy?
Muscular dystrophy (MD) is a genetic disorder that weakens the muscles that help the body move. People with MD have incorrect or missing information in their genes, which prevents them from making the proteins they need for healthy muscles. Because MD is genetic, people are born with the problem — it's not contagious and you can't catch it from someone who has it.
MD weakens muscles over time, so children, teens, and adults who have the disease can gradually lose the ability to do the things most people take for granted, like walking or sitting up. Someone with MD might start having muscle problems as a baby or their symptoms might start later. Some people even develop MD as adults.
Several major forms of muscular dystrophy can affect teens, each of which weakens different muscle groups in various ways:
The life expectancy (in other words, how long a person may live) for many of these forms of muscular dystrophy depends on the degree to which a person's muscles are weakened as well as how much the heart and lungs are affected.
How Do Doctors Diagnose MD?
In addition to doing a physical examination, the doctor will ask you about any concerns and symptoms you have, your past health, your family's health, any medications you're taking, any allergies you may have, and other issues. This is called the medical history.
Tests can help the doctor determine which type of MD a person has and rule out other diseases that affect the muscles or nerves. Some tests measure how nerves and muscles are working. Others check the blood for levels of certain enzymes, the proteins that cause chemical changes like converting food to energy. Abnormally high blood levels of certain enzymes from muscle cells are present in many people with MD. Blood tests are available to diagnose some of these disorders. They are genetic tests that look at the DNA. These tests can be useful in diagnosing Duchenne and Becker muscular dystrophy, certain limb girdle muscular dystrophies, Fascioscapular humeral muscular dystrophy, myotonic dystrophy, Emery Dreifus muscular dystrophy, ocular pharyngeal muscular dystrophies and certain congenital muscular dystrophies.
Sometimes a muscle biopsy is needed. The doctor removes a small piece of muscle tissue and examines it under a microscope. If a person has MD, the muscle tissue will have some unusually large fibers, and some of the other fibers will show signs of breaking down. Finally, genetic testing can show if a person has Duchenne MD or certain other forms of muscular dystrophy.
What's It Like for Teens With MD?
Teens have different experiences depending on the type of MD. One person might have weakened shoulder muscles and not be able to raise a hand in class. Someone might be unable to smile because of weak facial muscles. Another person might have weak muscles in the pelvis or legs, making it hard to walk from class to class. In some cases, you might not even be able to tell that a teen has MD.
For teens with MD, it can be hard to come to terms with the disease, especially because it gradually gets worse. For example, when someone who walks to class must start using a wheelchair in school, it can be a difficult adjustment. Support from doctors, family, and friends can make it easier to deal with MD. Changes like wider doorways at home and school can make it easier for teens with MD to do many of the things they enjoy.
If you know someone who has MD, there's a lot you can do to offer help and support. For example, some people with MD may need help getting books out during class or rides to and from events.
Often, people with illnesses
that gradually get worse over time can start to feel cut off from friends,
especially as their friends may be going out and doing more things while
they feel like they're becoming more housebound. Try planning activities
that include a friend, brother, or sister with MD, such as playing video
games or watching movies at his or her home. Your friend or sibling will
always be the same person — just more limited in movement.
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